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How I Came To Terms With My Father’s Desire to Die

When my dad announced he was done with life and wanted to end it by not eating, we started trying to convince him to hang on longer


an empty plate with the shadow of a person on it
Writer Lyn Rosenswig reflects on how she felt when her father, Perry Rosensweig, decided he wanted to die by not eating.
Tara Anand

“I hate to bother you on vacation,” began the call from my sister, and I knew that my Thanksgiving break in the Caribbean with my husband, children and extended family was over.

“Dad just told me he had decided to stop eating and drinking.” And so began a very long two weeks.

That Saturday in the Dominican Republic, those at the Thanksgiving gathering hugged and kissed goodbye, and swore we would never again drink to good health as we all had without crossing our fingers or throwing salt over our shoulders or something.

On the plane ride back to Newark, New Jersey, I reflected on how over the years my father, Perry Rosensweig, now 87, had spoken about the group Compassion & Choices, which had worked to empower people to chart their end-of-life journey. My mother had developed Parkinson’s disease in her 60s, and my father was the primary caregiver until her death a couple of years earlier. That he did not want a similar end was not illogical.

He had been an executive in a major toy company and often talked about the three P’s of negotiation: preparation, persistence and patience. For instance, he successfully negotiated the division of labor in his marriage: He was the major earner, and in addition to her job, my mother was responsible for household duties and cooking.

After retirement, they moved to Florida and played golf, tennis, bridge and poker, and loved their “summer camp,” as my father called it. When my mother’s disease progressed, my father sold their home, moved to an independent living complex in New Jersey to be closer to us, and renegotiated the terms of his marriage: He learned to use the washer and dryer, and even tried (unsuccessfully) to cook.

I was feeling a bit guilty. Even though he was supposed to (and did) celebrate Thanksgiving with my sibling, I felt I shouldn’t have left him. I had spoken to him daily and visited once or twice a week, but maybe it wasn’t enough? I was also now remembering what my father taught me — the P’s — and preparing myself to talk with him. I’d planned to have yet another discussion about geriatric depression and the usefulness of antidepressants. To my surprise, when I arrived at his home, my father was chipper as ever. Here are snippets of conversations which I wrote down shortly afterward:

Lyn: Dad, what happened? What led you to this decision? What are you doing?

Dad: I woke up on Thanksgiving Day and decided I had plenty to be thankful for: 61 years of a beautiful marriage, three children and their wonderful spouses, four grandchildren and their spouses, and two great-grandchildren. I have blocked arteries and a blocked vein; why should I wait until I have a stroke and end up incapacitated and have you suffer while I am in la-la land?

Lyn: Why do you think you are going to have a stroke?

Dad: I am a poker player. You got to know when to hold ’em and when to fold ’em. It’s time to fold ’em.

And so continued the negotiations, but Dad was ready for us.

On Sunday and Monday, my children came to visit.

“But Grandpa, I think I am going to get engaged this month, can’t you wait?”

“I love talking to you about the market.”

“Please hang in there.”

All to no avail.

One social worker after another came to visit over the second weekend of his hunger strike. The visits often turned into civil arguments about his decision, but he persisted, and frankly, to me, made sense. That Monday, I felt I had no choice but to accede to his wish that I take him to the onsite physician to get a signed DNR (“do not resuscitate”) form.

Doctor: What happened between last week when I saw you and now?

Dad: I didn’t like the report I got from the specialist. I can’t go out anymore and the quality of my life has deteriorated.

Doctor: There are other remedies for your ailments.

Dad: I am not going to wear any kind of a bag. [He had an underactive bladder and had to catheterize himself; he didn’t want to have to wear a catheter bag when he was no longer able to self-catheterize.]

Doctor: So you are just going to stop eating and drinking?

Dad: I haven’t had anything to eat in four days now.

Doctor: And how do you feel?

Dad: Except for the tremendous thirst, I feel good. Too good.

Doctor: Have you thought about your family?

Dad: Yes; that is why I am doing this. I don’t want them to go through with me what they went through with my wife. I have researched this, and I know in the state of New Jersey you can legally refuse food and water. [Note: Voluntary Stopping of Eating and Drinking, or VSED, as a means of ending one’s life is permitted in all 50 states.]

Doctor: Yes, you can. Have you planned this for a while?

Dad: I have given it a lot of thought, but I just decided to do it. In fact, I’m annoyed because I just paid to get a haircut and went shopping at BJ’s.

Lyn: Dad, would you at least consider the possibility that with the proper treatment for your depression, you might see your life and physical condition in a different light?

Dad: No, I won’t consider the possibility. I don’t want to wait. Your mother and I discussed not wanting to die in a nursing home, not able to speak or take care of ourselves, and there was nothing your mother could do about it. I am of sound mind, I have lived a rich life, and it is time.

Doctor (to me): Do you believe he is of sound mind?

Lyn: I have to say, yes.

After a little more discussion, the doctor signed the DNR. Then I called hospice and made an appointment for an evaluation. The hospice nurse came and said she would have to discuss the case with her superiors. The next day we were told Dad’s case went to a full executive committee and was approved.

a group of people
(From left) Ashley Hirsh, Craig Hirsh, Lyn Rosensweig, Perry Rosensweig, Amanda Hirsh, Bruce Schnelwar, Bret Hirsh.
Courtesy Lyn Rosensweig

Not all family members were on his side. But I now understood him. Despite my sadness and hope my father would change his mind, I knew he wouldn’t.

No matter: He was set on his path, and even seemed giddy at the prospect. When the hospice nurse visited, he told her, “I feel good, but I am dying of thirst!” And then winked.

My son called and couldn’t believe it when I told him Dad was on the phone with his broker. My son said, “What is he doing?” and my father, overhearing, shouted, “Tell him I’m buying futures!”

Another time, my father said in a serious tone, “You know, I know what it is like to die.” Wow, I thought, what he is thinking? Then he said, “There was a man here whose last name was Perry. The dining room staff called us by our first names. So when Mr. Perry died, many people thought it was me, and left nice notes for my family.” He laughed. “You should have seen the look on their faces when I showed up for dinner!”

Sunday, Day 10, we were all watching Tiger Woods and Graeme McDowell in the final round of the Chevron World Challenge. When they tied on the 18th hole and it went into sudden death, my father said with fake petulance, “What did he do to deserve ‘sudden death.’”

By Monday, he was starting to lose stamina, and he said he did not want to see the grandchildren again. They had all visited and said their goodbyes, and he wanted them to remember those visits, along with all the other good memories they had shared, rather than memories of him in rapid decline. Tuesday, December 7, was the first day he did not get dressed and shaved; he stayed in bed. He began to sleep more, and the dryness from not drinking made it very difficult for him to speak.

He was lucid and alert when he was awake, and communicated through gestures. I told him I didn’t remember him being that good at charades. He drew a rectangle in the air and then held up one finger. Then he drew another rectangle, held up five fingers and shook his head no. He pointed to the dryer. I figured it out! Make sure the aide uses only one sheet of fabric softener, not five.

That may have been the last communication I had with him. I’m not sure. I do remember I sat with him, held his hand, and he passed, peacefully, in his sleep.

It’s been 15 Father’s Days since he died. Going out that way isn’t for everyone, not by a long shot. But I think often of his preparation, persistence and patience, which he wielded to the very end to win his final negotiation. And I think of the strong, opinionated, humorous, loving man who died on his own terms, just as he had lived.

AARP essays share a point of view in the author’s voice, drawn from expertise or experience, and do not necessarily reflect the views of AARP.

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