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How Family Caregivers Strengthen Each Other and Create Stability

Discover how secondary caregivers can provide essential support, skills and steadiness to primary caregivers


three people sitting for a picture outside with green bushes behind them
Christy Callahan supports her dad who is the primary caregiver for his wife living with dementia.
Courtesy Megan Callahan

Maybe you’re helping a parent care for their spouse living with a chronic disease or supporting a sibling who’s caring for one or both of your parents. Either way, you’re part of the growing, but often overlooked, group of secondary family caregivers.

Christy and Megan Callahan have spent the past two years rallying around their father, Bob, as he cares for their mother, Colleen, who was diagnosed with dementia in 2019 and moved into a memory care community last year. Although their parents had typically followed traditional roles at home, Bob stepped fully into caregiving by taking over the cooking, shopping, cleaning, medication management and daily tasks until his wife’s steep decline in mid-2024 left him overwhelmed.

Christy, a registered nurse, quickly jumped in and became his weekend backup, driving two hours to Green Bay, Wisconsin, nearly every week to bathe, dress and spend time with her mom so their dad could rest and simply catch his breath. Megan, a licensed professional counselor in Michigan, took on the administrative and financial maze, researching home-care agencies and Medicaid’s spousal protection program, and navigating paperwork with support from her husband and brother.

two people celebrating their wedding anniversary
Bob and Colleen Callahan celebrated their 50th wedding anniversary in November 2023 before her dementia began to progress.
Courtesy Megan Callahan

A turning point came when Megan discovered dementia coach Sheri Fairman, owner of Dementia Care Solutions, whose guidance helped the family communicate more openly, divide responsibilities and eventually choose the right memory care community — one where their mother is now thriving. Along the way, the sisters learned powerful lessons: Don’t manage dementia in silence, don’t rely solely on medications to manage behaviors and don’t hesitate to seek professional support.

Their coordinated roles — Christy on the ground, Megan handling logistics and their brother assisting with financial oversight — have allowed their dad to remain deeply involved without burning out, and have kept their mother safe, calm and well cared for.

“Caregiving can’t fall on one set of shoulders,” says Christy. “Once we stepped in to support Dad, everything felt lighter, like we were finally carrying this together.”

two people sitting outside at a concert eating popcorn
Megan Callahan provides caregiving support from a distance to her mom.
Courtesy Megan Callahan

What is a secondary caregiver?

Secondary caregivers are often the right-hand person to the primary caregiver, stepping in whenever extra support is needed. Sometimes referred to as support caregivers, they may not shoulder the bulk of daily tasks, but their role is essential in filling gaps, maintaining routines and giving primary caregivers the breathing room they rarely get. Secondary caregivers often navigate a delicate dance with the primary caregiver: offering help without overstepping, staying supportive without taking control of what the primary caregiver is already managing.

“Secondary caregivers are the quiet forces orbiting the primary caregiver — children, siblings, friends — who step in to steady the system when the daily strain becomes too much for one person to hold,” says Joan Monin, professor of public health at Yale University in New Haven, Connecticut.

Monin, the secondary caregiver to her dad, who cares for her mom (diagnosed with dementia two years ago), provides emotional and practical support, often fielding multiple texts a day to help him process his questions, make decisions and manage his fears.

Depending on the intensity of the care recipient’s needs and the pressures facing the family, secondary caregivers can be the ones driving to appointments, preparing meals, tackling household chores or simply offering much-needed companionship. In many other cases, secondary caregivers may not provide hands-on care, but they offer an emotional ballast and help primary caregivers feel less alone in decisions that can feel overwhelming.

Kevin Corcoran played a crucial support role as a secondary caregiver, providing weekend and evening relief for his wife, Rosanne, who cared for her mom during her 12-year journey with vascular dementia. During her final six years, Rosanne’s mom moved into their house in the Philadelphia suburbs. Kevin played a crucial role behind the scenes, stepping in to handle household tasks and anticipate daily chores like meals, errands and the needs of their two daughters. By sharing these responsibilities, Kevin allowed Rosanne to devote her full attention to her mom without sacrificing her presence in her family’s life, striking a delicate balance between caregiving and family connection.

6 ways to step into a secondary caregiver role

Secondary caregivers often offer help at pivotal moments, providing backup when primary caregivers are drowning in other responsibilities, family obligations and the sheer demands of regular care. Psychologist Julia Mayer, coauthor of The AARP Caregiver Answer Book, knows the role well. When her older brother became the primary sibling to handle their dad’s care, Mayer took on the secondary role. Despite living three hours away from Long Island, where her dad and brother lived, she made the trip nearly every other weekend, balancing a full-time clinical practice and two teenagers at home.

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“As a secondary caregiver, my role was never to take over but to fill in the gaps, making sure my brother could keep going and my father’s care never skipped a beat,” explains Mayer. “Caregiving breaks when the load goes unshared. Backup caregivers help keep families functioning and connected during caregiving journeys.”

Here are practical ways to make the most of this role and meaningfully support primary caregivers, helping them sidestep burnout without overstepping as a secondary caregiver.

Finding ways to contribute: Not all support from secondary caregivers comes in the form of hands-on care. Sometimes it arrives through quieter channels: the sibling who lives two states away and calls every evening to keep their parent connected, the adult child who manages insurance paperwork or a family member juggling young children who checks in regularly and handles small tasks as they arise. These forms of involvement may look modest, but they knit a family’s efforts together.

Even simple acts, such as tracking appointments, troubleshooting a bill or staying up-to-date on symptoms, all contribute to shared responsibility and give the primary caregivers a mental break. “These contributions help distribute the emotional workload and reinforce that caregiving is a family effort, not a solo responsibility,” says Monin.

Offering emotional support is as important as practical help: One of the most meaningful roles of being a secondary caregiver is being a sounding board. Primary caregivers often need a safe place to release frustration, process tough moments, and find time to laugh in otherwise painful situations. “Simply knowing someone was walking beside him — emotionally, if not always physically — lifted an enormous burden for my brother,” says Mayer.

Monin adds that the most powerful thing a secondary caregiver can offer is empathy, listening without judgment and resisting the urge to fix things. That simple presence can reduce a primary caregiver’s sense of isolation more than people realize.

Adopting consistent, open communication is essential: When multiple family members are sharing the work of supporting a primary caregiver, communication becomes the glue that keeps the whole system steady. Mayer notes that consistent updates, whether through quick phone calls, brief emailed summaries after appointments, an ongoing text chain or a weekly Zoom check-in, help everyone stay on the same page. This steady rhythm of information lowers the temperature on misunderstandings, reduces the tendency for far-away relatives to question decisions without context and gives each person a clearer picture of what the primary caregiver is navigating day-to-day. “It also helps ensure that choices reflect both the care recipient’s wishes and the practical limits of the household doing the heavy lifting,” says Mayer.

Providing respite care when it’s needed most: Mayer’s regular weekend trips with her dad gave her brother crucial, uninterrupted time to rest, reconnect with his own family, and recover from the relentless demands of caregiving. “That relief wasn’t optional — it was essential,” she notes, “especially after the strain of caregiving began to affect his work-life balance .”

Respite doesn’t have to be a full weekend. Even small breaks can make a world of difference. “Sometimes the most important thing I could do was give my wife a few hours to nap, get outside or just spend time with the kids,” says Corcoran. “Those small pockets of relief kept everything running.”

Being one step removed can sometimes be an advantage: Having some distance from the daily intensity allows secondary caregivers to step in as calm, neutral mediators during tense moments. Mayer, for example, could navigate conflicts or emotional flare-ups between her dad, brother and other siblings without being swept up in the immediate stress, offering perspective and smoothing communication. Similarly, Corcoran could intervene when situational or sibling tension arose for his wife when caring for his mother-in-law, helping prevent frustration from escalating. “Secondary caregivers can often de-escalate situations more effectively,” Mayer notes, because their relative distance allows them to remain composed, listen actively and suggest solutions without the emotional overload that primary caregivers experience daily. This role not only eases immediate conflict but also supports healthier family dynamics over time.

Spotting the signs of burnout: Secondary caregivers can help prevent burnout by noticing early warning signs before a crisis hits. Primary caregivers try to “hero” the situation alone, waiting until a medical scare, a fall or a moment of emotional collapse before admitting they need help. From a distance, secondary caregivers can watch for patterns that caregivers might miss themselves, such as escalating irritability, persistent rumination over worst-case scenarios and hypervigilance, like constant worry about falls, wandering or driving risks even when precautions are in place.

“Secondary caregivers act as an early-warning system, observing signs of stress without judgment, helping the primary caregiver recognize challenges early and reinforcing that seeking support is a sign of strength, not weakness,” says Monin.

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