Technology is transforming nearly every aspect of the consumer health care experience, and applications that generate, capture, and leverage consumer health data are proliferating. To explore the impact of this ongoing digital health revolution on consumers—and to identify high-value opportunities for consumer advocates to shape the development of policy and practice in this issue area—the AARP Public Policy Institute hosted a three-part Innovation Roundtable series in collaboration with the National Partnership for Women & Families in spring/summer 2019:
- Imagining the Future: How Technology Will Revolutionize Health
- Navigating the Future: Promises and Pitfalls of Emerging Health Technologies
- Shaping the Future: Putting Consumers at the Heart of Digital Health
AARP Public Policy Institute Innovation Roundtable events are off-the-record conversations to foster open dialogue.
Starting the Conversation
Patients, family caregivers, and consumer advocates have an important role to play in shaping our connected health ecosystem.
Hear Lina Walker and Katie Martin (former director, National Partnership for Women & Families) discuss how data and technology are transforming the consumer health experience and why AARP and the National Partnership for Women & Families teamed up on this issue. Listen
Read the report summarizing the themes that emerged from the three Innovation Roundtables (with no attribution to stakeholders at the meetings). READ
Get facts and figures about how technology is transforming health.
Recommended background material for roundtable participants:
- Health Insurers Are Vacuuming Up Details About You — And It Could Raise Your Rates (ProPublica; July 2018)
- A Connected Patient is a Healthier Patient (The Commonwealth Fund; March 2019)
- Is Your Pregnancy App Sharing Your Intimate Data with Your Boss? (Washington Post; April 2019)
Supplemental background material for those who really want to dig in:
- Health Data Basics (FasterCures)
- The Untapped Potential of Health Care APIs (Harvard Business Review; December 2015)
- HIPAA and Protecting Health Information in the 21st Century (JAMA Viewpoint; May 2018)
- Medicine Ignored This Insulin Problem Hackers Solved It (Medium; August 2018)
- If Your Medical Information Becomes a Moneymaker, Could Your Get a Cut? (National Public Radio, All Things Considered; October 2018)
- Why Doctors Hate Their Computers (New Yorker; November 2018)
- The Business of Selling Your Location (The New York Times, The Daily podcast; December 2018)
- Privacy in the Age of Medical Big Data (Nature Medicine; January 2019)
- Your Company Wants to Know If You’ve Lost Weight (Wall Street Journal; February 2019)
- Bad Actors Getting Your Health Data Is the FBI’s Latest Worry (Leapsmag; February 2019)
- Warnings of a Dark Side to A.I. in Health Care (The New York Times; March 2019)
- Will Patients Be Better Consumers When They Can Access Their Health Data? (Health Affairs Blog; March 2019)
- The Privacy Project (The New York Times; April 2019 and ongoing)
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