AARP Hearing Center
When a new client walks through social worker Dani Rodwell’s virtual door, chances are they already at least think they know what mental health condition they have. As a specialist in neurodivergent conditions like attention deficit hyperactivity disorder (ADHD), Rodwell frequently sees people saddled with stats, studies and personal anecdotes to support their social media–fueled suspicions.
They might cite influencer Jessica McCabe, who describes signs of ADHD in a YouTube video with 3.8 million views. “You can’t sit still. You bite your nails. You get into a relationship and forget to go to class — or work — or eat,” she says. “You click your pen on and off. Your long-term goals change at least once a month.”
Or maybe they came across self-help titan Mel Robbins, who talks about her own late-in-life ADHD diagnosis on her blockbuster podcast. “If you don’t get properly tested and address it, you know what the number one thing that happens [to women is]?” she says. “You develop anxiety.”
These popular voices aren’t necessarily wrong. And neither — usually — are Rodwell’s clients.
“They're resonating with this content for a reason, and [I’d guess] 90 percent of the time after all that research, they're usually right,” she says. “It results in a diagnosis.”
That’s the upside of health information proliferating on social media: The conversations can raise awareness of many misunderstood mental and physical health conditions, help people with long-overlooked symptoms feel validated and direct followers to real-world help. Multiple studies show social media health influencers have the potential to improve public health by promoting habits like seeking appropriate medical screenings, following a healthy diet and exercising.
But there are significant, even dangerous, downsides too. In one 2025 study published in JAMA Network Open, for example, researchers found that influencers are doling out “overwhelmingly” misleading information about medical tests on Instagram and TikTok. After analyzing nearly 1,000 posts about screenings like full-body MRI scans and gut microbiome tests, they found most were promotional, didn’t reference scientific evidence, had clear financial interests and didn’t mention potential harms. And yet, they reached nearly 200 million followers.
— 2025 JAMA Open Network study
Similarly, a recent paper in BMJ found that social media influencers’ health advice is prone to biases due to a lack of medical expertise and industry influence, as well as their own entrepreneurial interests and personal beliefs. “Such advice can cause psychological, physical, financial and systemic harm — from inaccurate self-diagnosis and inappropriate treatments to unnecessary spending and higher health care costs,” the study authors write.
Rodwell, cofounder of NeuroSpark Health, has seen some these negative effects play out in her practice — and her family. After her mother bought a $400 trauma-healing course she came across on social media, she called Rodwell for downloading help. What Rodwell helped her with instead was calling the company for a refund.
“When you're scrolling and you're struggling with something, and someone's saying they have answers that could finally help you and if you just pay this amount, your issues will magically resolve — that’s very tempting,” Rodwell says. “It’s like a magic pill situation.” The problem is, it doesn’t work.
Social media and older adults: Who’s at risk?
Most research on social media health advice looks at how it affects young people. But adults over age 50 can get sucked into Instagram and Facebook, too, and some of them are even more susceptible than their younger counterparts to health misinformation (or information that’s mistakenly inaccurate or incomplete) and disinformation (information that’s intentionally misleading ) while there.
A 2025 AARP Tech Trends survey found that 9 out of 10 adults age 50 and over use social media, with 72 percent using Facebook and 33 percent on Instagram.
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