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Resources and Support for Family Caregivers Skip to content

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Resources Caregivers Should Know

Where to find services and support for family caregiving

Caregiving Resource Center

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En español | Caregiving presents an array of challenges, from maintaining your loved one’s (and your) physical and emotional health to meeting medical needs, finding financial resources and arranging long-term care.

The following agencies, groups and organizations connect family caregivers with direct services and supports and offer a variety of information resources, including care guides, how-to videos, tip sheets and webinars.

Information, services and support

AARP Family Caregiving

877-333-5885 (888-971-2013 for Spanish)

Along with comprehensive coverage of issues affecting caregivers, AARP offers free care guides, legal checklists, information on care options and an online community that supports all types of family caregivers. You can also call our caregiver support line for one-on-one help.

Caregiver Action Network

855-CARE-640

Information, educational materials and support for family caregivers.

Community Resource Finder

A project of AARP and the Alzheimer’s Association that provides easy access to Alzheimer’s and dementia resources, community programs, medical services and long-term care options in your area.

Eldercare Locator

800-677-1116

Connects caregivers to area agencies on aging and other local resources for finding respite care, insurance counseling, transportation and other services for older Americans and family members.

Family Caregiver Alliance

800-445-8106

Information, education and support groups for family caregivers, including the Family Care Navigator, a state-by-state list of services and assistance.

National Alliance for Caregiving

202-918-1013

A coalition of national organizations focused on family caregiving issues. The alliance conducts policy analysis and tracks legislation and initiatives that affect caregivers and care recipients.

National Alliance on Mental Illness

800-950-6264

Grassroots alliance of local organizations offering information, resource referrals and peer-to-peer support for people living with mental illness, their family members and caregivers.

National Institute on Aging

800-222-2225

An arm of the National Institutes of Health, NIA offers extensive online information on common age-related health problems, including a section on caregiving for people with serious health issues.

Well Spouse Association

800-838-0879

Provides support for spousal caregivers, including a national network of support groups and an online chat forum.

Alzheimer’s and dementia

Alzheimer’s Association

800-272-3900

Information and support for people with Alzheimer’s disease and their caregivers. Operates a 24-hour helpline every day and offers care navigator tools.

Alzheimers.gov

800-438-4380

A federal government website focusing on Alzheimer’s and dementia care, research and support, including resources for caregivers.

Memory Café Directory

Lists more than 700 memory cafés offered in hospitals, libraries, senior centers and other facilities to help people with dementia and other cognitive issues, as well as their caregivers, combat social isolation and connect with others in similar situations.

AARP care guides

AARP’s free planning guides help family caregivers adjust to the job and make it more manageable. Follow the links to download:

Prepare to Care: A Planning Guide
for Families

In-depth information and advice on starting vital conversations with older family members, organizing important documents, assessing your loved one’s needs and finding key resources. Prepare to Care is also available in Spanish- and Chinese-language versions and editions tailored for Asian American and LGBT families.

Military Caregiving Guide: For Veterans, Service Members
and Their Families

A road map to meeting the unique challenges of caring for a wounded, ill or aging veteran or service member. AARP has also produced a tool kit for employers to help them accommodate and assist military caregivers in balancing workplace and caregiving responsibilities.

Digital care guides

These online guides offer customized help for specific scenarios, such as long-distance caregiving and caring for a loved one with cancer or dementia.

Cancer

American Cancer Society

800-227-2345

Offers caregiver and family resources, including a Caregiver Resource Guide available in interactive or downloadable form, videos, and other educational and support materials.

National Cancer Institute

800-4-CANCER

Information and research for caregivers serving cancer patients, including downloadable booklets on caregiver resources and self-care.

Cancer Support Community

888-793-9355

Connects cancer patients and their caregivers through a global network of support organizations and the online community MyLifeLine.

Hospice and palliative care

Get Palliative Care

A directory from the nonprofit Center to Advance Palliative Care that lets you search for providers of palliative care in your area.

Hospice Compare

Search tool to find hospice providers in your area who participate in Medicare and to how they rank against national averages in areas such as family experience and quality of care.

Hospice Foundation of America

800-854-3402

Professional organization for hospice providers that offers practical tips and advice on family caregiving and hospice.

In-home care

National Association of Home Builders

800-368-5242

The industry group offers a certified aging-in-place specialist (CAPS) designation for builders who specialize in designs and modifications to help older adults continue to live at home. Consult their directory for a specialist near you.

Home Health Compare

Search tool that lets you find and compare Medicare-certified home health agencies in your area, with information on services provided and patient ratings.

Legal and financial help

Medicaid

877-267-2323

Medicaid provides health coverage for people with limited income and assets, and unlike Medicare it can help pay for long-term care such as in a nursing home. Medicaid coverage differs from state to state. Contact your state agency with questions.

Medicare

800-MEDICARE

The federal health program for people age 65 and older or disabled covers home health and skilled nursing services in some circumstances, and its website has tools to help you find care facilities and providers that accept Medicare.

National Academy of Elder Law Attorneys

Nonprofit association of lawyers and organizations that provide legal services for older adults and people with special needs. You can use its site to find lawyers in your area who specialize in long-term care, power of attorney and other aging and caregiving issues.

State Health Insurance Assistance Program

SHIPs, as they’re called, offer local insurance counseling and assistance to Medicare recipients and their families and caregivers.

Long-term care

LongTermCare.gov

Online clearinghouse for information and tools to plan for your or your loved one’s long-term care needs, maintained by the federal Administration for Community Living.

National Center for Assisted Living

202-842-4444

An arm of the American Health Care Association, NCAL offers consumer resources on finding assisted living facilities and related programs in your state and information on payment options.

Nursing Home Compare

Searchable database with information on every Medicare- and Medicaid-certified nursing home in the country.

VA: Geriatrics and Extended Care

Department of Veterans Affairs guide to long-term services and supports for older military veterans, including VA nursing homes, other senior residences and help with home-based care.

Military caregivers

Department of Veterans Affairs (VA)

855-260-3274

The federal agency responsible for providing health care services and other vital benefits to eligible U.S. military veterans has a Caregiver Support Program that offers peer support, mentoring, caregiver training programs and a helpline.

Elizabeth Dole Foundation

202-249-7170

Works to strengthen services for Americans caring for wounded, ill or injured family members who served in the military. Its programs include Hidden Heroes, an online support community for military caregivers.

Military and Veteran Caregiver Network

American Red Cross-affiliated network of online and community-based support groups and mentoring programs for caregivers of service members and veterans.

Military One Source

800-342-9647

A Department of Defense-financed program that provides resources and support to active-duty, National Guard and Reserve service members and their families, including counseling and consulting services for caregivers.

Respite care

ARCH National Respite Network and Resource Center

Find programs and services that allow caregivers to get a break from caring for a loved one. The National Respite Locator is a state-by-state list of services and assistance.

National Adult Day Services Association

Professional organization for providers of adult day care with consumer resources including an adult day care locator and advice on evaluating and choosing a local center for your loved one.

Senior Corps

800-942-2677

The national service network’s Senior Companions program matches older volunteers with seniors who have trouble with daily tasks, helping them live independently and providing respite for family caregivers.

Editor's note: This resource, originally created in 2017, has been expanded and updated with more recent information.

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