As two close siblings, Marie and her older sister, Carol, had quickly devised a mutually agreeable caregiving plan following their mother’s stroke. Because Marie was married and still working, Carol would move in with Mom and become her primary caregiver while Marie pitched in on weekends. But however well-conceived their arrangement, things turned out differently. Whenever Marie said she’d spend time with Mom so that Carol could go out with friends, Carol said yes at first but soon after found reasons to change her mind. It was as if she was determined to do it all herself or thought that no one — not even her capable sister — could care for their mother as well as she did. If Marie then protested, Carol would make light of switching plans. But she wouldn’t leave Mom.
Why would Carol act this way? This common interaction has been called “help-seeking, help-rejecting” behavior. The caregiver understands the importance of self-care and knows she is supposed to ask others for assistance but can’t bring herself to use it. Oftentimes, guilt about neglecting her perceived duties is the cause; other times, it’s justified by expedience. (“It’s just easier if I do it myself.”) I think of this pattern as “yes-but” caregiving. For example, a caregiver might say, “Yes, that would be wonderful if you would drop off dinner for us,” followed soon after by, “But Mom always prefers my cooking.” Or: “Yes, I would greatly appreciate it if you would take Mom to her doctor’s appointment,” followed by, “But it’s better for me to go since I can best answer the doctor’s questions.”
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The rationales offered by yes-but caregivers for saying no after having said yes aren’t implausible. However, their sudden changes of direction often leave others feeling confused and frustrated. Family members and friends may even feel personally rejected, as if the assistance they could give is deemed deficient; after a couple of rounds of this, they may back away entirely. Caregivers lose vital support that way. They also fail to receive help that, in truth, they do need to sustain themselves over caregiving’s months and years.
How can others understand yes-but caregivers’ choices and convince them to accept the help they originally agreed to? Here are some ideas:
Don’t take yes for an answer
Certainly, there are many caregivers who are overjoyed for any aid they can get. But others, like Carol, are guilt-ridden and ambivalent about accepting help; it’s a safe assumption that, even when they say yes, they have qualms about it and are prone to reversing course. Rather than experience this as rejection, view it instead as a reflection of the caregiver’s inner struggles. You can help reduce those struggles, at least a little, by granting them wide latitude and saying mildly, “Whatever works for you. I’m here for you if you should ever need me.” You can also add empathetically, “You are so devoted to providing care. It must be hard at times to allow others to help.”