Stories from Caregivers: Teresa from RHODE ISLAND
RI
Teresa
FROM RHODE ISLAND
My husband Chick and I have been married for 24 years. In late 2004, he was diagnosed with early onset Alzheimer's disease. He is currently in the late stage of the disease, non-verbal and unable to communicate, with the exception of an occasional smile, which is priceless. While he is able to slowly move his arms and legs a little, Chick is essentially immobile, and requires specialized equipment in order to be able to transfer him throughout the day. He cannot be left alone and needs 24/7 assistance. We are fortunate to have care through the federally-funded PACE program, so that I can still go to work as a Speech-Language Pathologist. In addition to working full time, I continue to handle all of the household responsibilities, as well as assist daily with Chick's personal care in helping him get dressed, bathed and ready for daycare, or for his evening at home. The time spent with his two daughters who visit weekly for Sunday dinner is cherished, and their commitment in helping me whenever I ask is especially appreciated. While at one point Chick was in a nursing facility, once the issues related to him being placed there were resolved, the staff at PACE was instrumental in helping me realize that I could care for him at home. The day I picked him up from the nursing home was without a doubt one of my happiest. Chick continues to change, obviously not for the better, and so we also continue to make adjustments in order to accommodate his needs. It's often very physical work, and sometimes just getting him into and out of the equipment he requires to be able to use the chair and bed is extremely strenuous. But when I wake up each morning with him sleeping beside me, I know I wouldn't have it any other way. Does he understand that it's me when I'm speaking to him? I tend to doubt it at this point. However, having him nearby whether talking to him, listening to music, watching TV, cooking or even cleaning the house, and taking care of him each and every day, is so worth any minor inconveniences I might incur. I love him and will continue to face the challenges that most certainly will arise in order to keep him where he belongs, at home with me.
