Staying Fit
About the Collaborative
AARP and the National Partnership for Women and Families (NPWF) created this Collaborative for patient/consumer organizations and advocates to exchange information, discuss ideas, and coordinate response on high-profile policy opportunities as they arise.
Background
Technology is transforming many aspects of consumer health care experience, and applications that generate, capture, and leverage health data are proliferating. Federal policymakers are also exploring how to facilitate the capture, sharing, and use of data across the health care system, including modifying and/or updating laws and regulations governing health privacy and information exchange. The voices, perspectives, and priorities of patients, caregivers and advocates are essential in this changing milieu. Without this input, resulting policies/practices may exacerbate harmful practices or discriminatory uses - especially for those with lower incomes, communities of color, immigrants, people with disabilities, and others with less social capital.
Putting Consumers at the Heart of Digital Health
In 2019 the AARP hosted an Innovation Roundtable series in collaboration with the NPWF on the following topics:
· Imagining the Future: How Technology Will Revolutionize Health
· Navigating the Future: Promises and Pitfalls of Emerging Health Technologies
· Shaping the Future: Putting Consumers at the Heart of Digital Health
The objectives of the series were to explore the impact of this ongoing digital health revolution on consumers, and to identify high-value opportunities for consumer advocates to shape the development of policy and practice in this issue area. Click here to learn more.
Digital Health Learning Collaborative Webinars
Beyond HIPPA: Protecting Health Data Privacy
On January 13, 2021 Alice Leite (eHealth Initiative) and Andrew Crawford (Center for Democracy & Technology) discussed the gaps in legal protections for health data outside HIPAA’s coverage and presented their Consumer Privacy Framework for Health Data. The Framework raises the bar for consumer privacy by shoring up protections for non-HIPAA covered health data and shifting the burden of privacy risk off of consumers.
Meeting Passcode: 1-13-DHLC
Mind the Gap: Digital Divide and Health Equity
On February 10, 2021 Javier Jiménez Jirau of Health Gorilla discussed digital health, promoting health equity, and overcoming the digital divide. Approximately half of Americans (53%) say the internet has been essential to them during the COVID-19 outbreak, and another 34% call it “very important.” Yet, as many as 162.8 million Americans do not have at-home internet access – a disproportionate number of whom belong to black, Indigenous and people of color communities.
Meeting Passcode: 2-10-DHLC
Contact
For more information, please contact Beth Carter at ecarter@aarp.org.