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Digital Health Learning Collaborative for Consumers

A collaborative for consumers and advocates to exchange information, discuss ideas, and coordinate response on high-profile federal policy opportunities.

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About the Collaborative

AARP and the National Partnership for Women and Families (NPWF) created this Collaborative for patient/consumer organizations and advocates to exchange information, discuss ideas, and coordinate response on high-profile policy opportunities as they arise.

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Background

Technology is transforming many aspects of consumer health care experience, and applications that generate, capture, and leverage health data are proliferating. Federal policymakers are also exploring how to facilitate the capture, sharing, and use of data across the health care system, including modifying and/or updating laws and regulations governing health privacy and information exchange. The voices, perspectives, and priorities of patients, caregivers and advocates are essential in this changing milieu. Without this input, resulting policies/practices may exacerbate harmful practices or discriminatory uses - especially for those with lower incomes, communities of color, immigrants, people with disabilities, and others with less social capital.

Putting Consumers at the Heart of Digital Health

In 2019 the AARP hosted an Innovation Roundtable series in collaboration with the NPWF on the following topics:

· Imagining the Future: How Technology Will Revolutionize Health

· Navigating the Future: Promises and Pitfalls of Emerging Health Technologies

· Shaping the Future: Putting Consumers at the Heart of Digital Health


The objectives of the series were to explore the impact of this ongoing digital health revolution on consumers, and to identify high-value opportunities for consumer advocates to shape the development of policy and practice in this issue area. Click here to learn more.

Digital Health Learning Collaborative Webinars 

Contact


For more information, please contact Beth Carter at ecarter@aarp.org.