Changing How We Provide Care: Lessons Learned From the Pandemic

AARP and the CDC have recommendations and checklists to assist caregivers in their preparations. Thinking about ways to limit contact or separate from a vulnerable family member is easier to do in advance than on the fly. Knowing what respite care options are available to you can save time and reduce caregiver burnout. Learning your options and having a backup plan for yourself and household members to recover from the virus and help quell its spread is a new — and necessary — part of caregiver disaster planning.

Embrace alternative means to receive medical care

Telehealth (medical care provided remotely, by phone or videoconference) has been increasingly used this year. It keeps caregivers from having to expose their care partner to other, possibly sick people at an office visit. Encourage your family and friends to embrace it and share tips and tools to make the most of telehealth services.

If an in-office visit is a necessity, caregivers must do their research in advance to avoid being surprised on the day of the appointment or when seeking treatment. Learn office and facility policies and procedures in advance to keep the visit as smooth as possible.

Concerns about keeping loved ones safe in facilities are prompting families to reconsider moving into, or remaining in, long-term care. The only way through this is for families to collaborate on alternative options, whether it is aging in place, shared elder care, or another option. Studies show that 1 in 3 Americans are researching how they would pay for long-term care services if they needed them. Take the reins on this today if you expect that you or your care partner will need medical or nursing care beyond what can be provided at home.

Financial Security

In online searches and support groups, caregivers frequently ask if there is a way to be paid and how they will keep their jobs while juggling at-home responsibilities. It's no wonder this is such a popular topic among caregivers, especially in a time where so many have been furloughed, laid off and terminated.

Be paid to care

Although there are not many ways, it is possible to be paid to provide care for a loved one or friend. If you want to learn what's available to you, consult an elder law attorney in your state. Aside from government and insurance programs, it may be possible for your care partner to pay you and still qualify for their own public benefits.

The fact that this is such a popular topic means that we all have to put paying our caregivers into our financial plans. Can money be set aside in our long-term plans to account for the realistic possibility that a relation or friend will have to care for us? Ultimately, it may be less expensive than paying for help from professionals.

Maintaining employment and receiving caregiver benefits

The job market is uncertain. Feeling the strain, many people are forced out of work or departing on their own. And it's mostly women, who are leaving at four times the rate of men.

While this seems bleak, the coronavirus has prompted a sharp and sudden acceleration in the implementation of family-care benefits in workplaces nationwide. More companies are offering subsidized backup elder- or child-care. And flexible work arrangements are becoming commonplace. It is estimated that three quarters of American corporate workplaces are now offering flexible arrangements, spurred in large part by the pandemic.

These trends all favor the unique work-life juggling act that caregivers experience. If your company isn't offering these benefits or is resistant to them, sharing the research and guides may help create a culture more suited to the needs of caregiving employees today and tomorrow.

Increasing knowledge and access to resources

Historically, caregivers wait until about a year of caregiving to begin researching outside resources that can help them. We cannot afford to wait so long in such tough times.

Caregivers need to know much sooner what assistance exists and how to access it. With laws and policies changing frequently, it is difficult to stay up to speed. This year, especially, take the time to learn about major consumer protections that have been passed in response to COVID-19. Retirement savings waivers, mortgage relief, utility assistance, tax credits and loan modification laws could keep your family afloat. Knowing where to find free or low-cost advice, like in the resources listed here, can assist in accessibility. Contacting your local Area Agency on Aging and accessing AARP's resource guides may also point you in a good direction.

Caregivers are used to rolling along with changing circumstances. But even the most adaptable people have felt the strain of the COVID-19 pandemic. We must talk more, not less, about our challenges. We have to plan our caregiving lives, share our experiences and knowledge, and advocate for our workplaces and lawmakers to provide much-needed support. For the foreseeable future, increasing our preparedness and maintaining financial and employment security for caregivers will be a bridge over tumultuous waters.