En español | Did you know that caring for a beloved parent, friend or spouse can hurt not only emotionally, but also physically?
Caregiving can take its toll. And with the number of Americans age 65-plus projected to double by 2030, caregiving demands will only increase. "But how do we take care of the caregiver who needs help navigating a complex, fragmented system of care with little support?" asks gerontologist Debra Sheets. Into the breech, progressive programs are offering family caregivers support and coping strategies, steering them to community resources, and introducing them to other caregivers.
See also: 9 tips to make caregiving easier.
Here are a few:
The Caregiver Teleconnection, San Antonio
How It Works
Caregivers in San Antonio who can't or won't leave their homes and feel isolated participate in one-hour teleconferences in English or Spanish. They dial in to hear an expert — a physician, attorney, therapist, financial expert or gerontologist, for example — discuss a topic affecting caregivers, offer tips and resources, and answer listeners' questions and comments. Caregivers get to connect with others in the trenches, too.
How It Really Works
Debra Schultz, 52, whose husband has early-onset Alzheimer's, has participated in more than 15 sessions from her Cedar Park, Texas, home. "I don't have to spend 30 minutes to get to a location and 30 minutes back and arrange for someone to watch my husband," she says.
Another draw is the phone's anonymity, says Schultz. "Here I can say what I want and don't have to worry about what the other person thinks."
Share the Care, Orlando, Fla.
How It Works
Caregivers take an online survey at www.caregivercentral.org that asks about their current situation, the kind of help they'd like, their financial resources, and the mental and physical health of the caregiver as well as the patient. Based on the answers, a social worker or geriatric specialist creates a tailor-made list of services useful to the caregiver, such as adult day care, meal delivery, transportation, counseling, case management or in-home assessment.
Survey respondents in central Florida can then click on vetted service providers in their area. Other cities in Florida and in other states hope to follow suit soon.
How It Really Works
Last year, Lou Minnis, 55, of Orlando, felt his life imploding. He was juggling several responsibilities — a wife with multiple sclerosis, a teenage daughter who had to be shuttled to lacrosse and band practice, and a full-time job as a deputy sheriff.
After Minnis took the survey, a social worker called to tell him a grant would pay for someone to go to Minnis' house two days a week for three hours and feed his wife lunch. Another two days of the week Share the Care arranged not only day care, but a bus to get her there. They invited Minnis to their annual weekend event to meet other caregivers, and found him respite care (which he had never heard of).
"The organization came to me at a time when it looked like there was no hope," says Minnis, who is also a minister. "Even though I help save people's spiritual lives, Share the Care was the one who showed me the light at the end of the tunnel."