This forum post is hidden because you have chosen to ignore maryspeaking. Show Details
This forum post is hidden because you have submitted an abuse report against it. Show Details
First, that being a sibling caring for a sibling would put me in the "odd man out" position. Everthing I read about caregiving is for people caring for spouses, parents or disabled children. I can't be the only person in this situation.
Second, FMLA (Family and Medical Leave Act) does not cover siblings caring for siblings. I guess siblings dont count as family. The end result was I was fired from my job for being AWOL (absent without leave). As a result, I cannot collect unemployment.
Third, do not be overjoyed over multiple offers of help at the beginning of the person's illness. When it comes to long term caregiving there will be slim pickings amoungst those who originally offered help.
Fourth, the medical profession and the social work profession within the medical setting needs some serious lessons in how to treat family caregivers. I can't tell you the number of times I wanted to tell my fellow social workers how they sucked at discharged planning and understanding family dynamics.
Fifth, I knew this but had to experience the fact that not every woman is suited for caregiving, especially long term caregiving. Can't tell you the number of times I wanted to take another female family member and send her to the moon!
Sixth, caregiving for someone who has suddenly gone from being independent to nearly totally dependent is just as devastating for the care recipient as the caregiver, just in different ways. It is not like seeing the changes taking place gradually where you can "prepare" yourself.
Seventh, you cannot be both a family caregiver and a POA. Those conflict of interest clauses can really wreak havoc on caregiving plans.
It has been a long, difficult, isolating and emotionally draining 10 months. I am unemployed, flat broke but not broken down and will rise again!