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In Response to RE: New Member by LJFJ
My husband was diagnosed about 4 yrs ago with MDS - a blood cancer. We have traveled to Bethesda Maryland and Omaho Nebraska for clinical trials with no success. We have tried various forms of cemo with no success. Finally after over 100 blood transfussions it was suggested we try a bone marrow transplant, which he had been denied earlier because of being over 60. We moved to 3 hours from home to what was a top BMT clinic in the state.Transplant went great and he was discharged after 3 weeks even though he was acting strange. I was told this was just cemo brain. In our travel trailer near the hospital for 2 days and he got totally crazy and in horrible pain. Got help getting him back and after a few days they decided it was one of the drugs. Gave him another drug "less likely" to cause problems. This time out about 2 weeks and back in the hospial with rejection issues. Broke his hip in hospital. Then more crazy behavior from the other drug. Couldn't eat by mouth for over 8 weeks and then just refussed to eat. Sent to rehab because of the 4 months in hospital. Not eating and going downhill in rehab, could stand when he got there but not when he left 3 weeks later. Sent to another rehab and ended up in ICU for 4 weeks for malnutrition and a severe infection. Now at yet another rehab not eating or moving. He wants to come home but no matter how many tell him what he has to do (eat & excersise) he won't try. I'm sick of arguing, begging, pleading, crying, convincing. Saying the same things over and over without getting through to him. He is depressed I know. He is getting drugs for that too. He just lays there and says no to every request. He wants to come home, but I need to be able to at least help him into a chair to be able to handle him at home, It's been 6 months and I'm ready to quit, but everytime I feel guilty and try again. I' so tired. Has anyone been there who can give me advise?