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I am the main caregiver for my wife who has MS. She is wheelchair bound and mostly home bound. She cannot walk or stand by herself, she has no use of her left hand and limited use of her right hand. She was diagnosed in 1991 with a form of MS that none of the so called miracle drugs will help.
I retired from working full time in Oct. of 2011, with the intent of doing what I worked all my life to do, take it easy, go fishing and camping, but these things are almost impossible to do because taking care of her is a full time job. I would like to take her with me but she would need another person to help me take care of her. We would like to travel to see our grandkids who live about 900 miles from us but that would mean an extra pair of hands to help with her care like bathing, etc.
I try to get some time to myself to do these things but trying to make arrangements for her is almost impossible. She has a home care service to give her baths, pt and medical needs, but everything else falls on my shoulders. Whenever I think I can get away for just a day, I don't have anybody to go with, because usually they are too busy or have some other excuse.
I guess I would like to know is when do I make the decision to put her into a permanent care facility? Life isn't getting ny shorter and I would like to enjoy a little bit of my retirement.