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Thanks everyone for your kind words. I just want to let you know that this has been the strangest year of my life! First the spinal cord lesion showed up in May in an MRI. Then we thought in July that I had thyroid cancer so I had a total thyroidectomy. Turned out the thyroid was cancer free. Yesterday we saw the new neurosurgeon I posted about. Initially after looking at the old MRI from May, he thought the lesion was cancer and had to come out so he was prepared to send me to a colleague of his at Johns Hopkins, Dr. George Jallo. Thankfully he decided we needed a new set of images, cervical and thoracic MRI. After we finished with that, he called hubby and me back up to his office to review the results. Much to his surprise and our shock the lesion did not show up on the new MRI. He showed both images, old and new to us, side by side. You could clearly see the lesion in the old one and all we could see in the new one was a very light, cloudy white area where the lesion was before! So he said that there will be no surgery and no biopsy since there is nothing to biopsy or remove!!! He thinks most likely the multiple sclerosis symptoms I've been having (which are not MS, been tested for that) are an inflammatory disorder that mimics MS. He also said that there is a cancer, I think he said lymphoma (my short-term memory is almost non-existant these days) that steroids will mask. I've been on Prednisone since late July for the inflammation and swelling in my back and to ease the spasticity in my legs. Other than a God-given miracle, does anyone have any thoughts on why this has occurred? I don't understand how the thing could have dissolved and disappeared but my legs are not any better, I can barely walk because they are so heavy. Not to mention the bladder incontinence and bowel issues. I'm so confused and my drs. are stumped. Don't get me wrong, I'm grateful as all get-out, I just wish I could understand what's going on.
Thanks for listening.
You must feel like you are on a merry-go-round. My only suggestion is that you do not stop asking questions until someone has an answer. You know how you feel. I think it is important to be a pro-active as we can possibly be.
I will share with you briefly that in 1998 I was told that I had a virus. For 9 days I suffered severe abdominal pain, etc. Finally I was sent to an emergency room. I had an appendix that ruptured as soon as the surgeon touched it. My regret is that I was not more assertive with the medical personnel. I am fortunate that I survived.
They have a lot of training that we don't have. They can do lots of tests but YOU are the one who best knows your body.
Good luch to you in finding a solution soon.