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In Response to Re: Dementia by jane
I especially agree with 'Dementia SUCKS!"
Seriously, not that that wasn't serious, this disease is a strange journey. A journey that is more the caregiver's than the patient's.
When my mother (and all dementia patients) 'forgets'...it isn't exactly forgetting. I think of 'forgetting' as a realization of sorts. In dementia there is seldom realization of forgetting...they have 'never known this'.
Having just had a meal and asking for food...she hasn't 'forgotten'...in her world she hasn't eaten. She actually says she's hungry. It truely is as if the person is in a totally different reality than the people around them.
I deal with this daily and it never seems to get easier. Every day is a new adventure. That newspaper article is just as new the third time around and the weather is surprising every time she looks out the window.
I've read dozens of articles, attending many seminars, and no description seems to fit this disease. Putting a soft and tender spin on it denies the reality of this journey for the care giver who lives with the patient. All the patience in the world is testing when the patient wanders in the night and empties the refrigerator! Sometimes I can't help but just laugh...what a journey.
Do we learn from this? Do we find glory in life and touch? Are we tested beyond capacity? You BET! Could I have done without these lessons? Hahahaha! You can put money on that one!