Join AARP
Join for Just $16 A Year
- Discounts on travel and everyday savings
- Subscription to AARP The Magazine
- Free membership for your spouse or partner
Message Boards Directory
Welcome to the AARP Discussion Board. Here you can talk with peers about current events ranging from Social Security to caring for your parents to the latest on health care reform. It is also the perfect place to exchange healthy eating recipes and job hunting tips.
These forums are for you to engage and have fun meeting new people. Just remember the community code: Be nice!
Care giving for MS
False
Caregiving
Care giving for MS
<font face="arial, helvetica, sans-serif" size="1"><div>In this caregiving message board lean on others for advice, tips or just the proverbial shoulder to cry on.</div><div><br /></div></font>
I am a 52yr. old mother of a daughter (26) that has MS. Diagnosis in 2009 with 6 active lesions on her brain, 2012 has double the amount of active lesion down her cervical. I am her so
0
Cat:8548aeff-cf8c-4e73-ad17-e0a4380e2232Forum:7bd0772e-38a2-437e-9e64-4a31de425465
Cat:8548aeff-cf8c-4e73-ad17-e0a4380e2232Forum:7bd0772e-38a2-437e-9e64-4a31de425465Discussion:dbae829d-8451-4d6e-8df8-3b7b74e5757f
Forums » Relationships » Caregiving » Care giving for MS
|
Care giving for MS
posted at July 9, 2012 12:48 PM EDT
|
Posts: 1
First: July 9, 2012 Last: July 9, 2012 |
I am a 52yr. old mother of a daughter (26) that has MS. Diagnosis in 2009 with 6 active lesions on her brain, 2012 has double the amount of active lesion down her cervical. I am her sole caregiver.( my husband works out of town ) half the time Her cognitive is so effected. I am raising a child again. I wish I would of known 3yrs ago that I would have to have all my strength, body, and mind. Because my spirit is fading.I go to support groups, they are not a 24/7...anybody in the same boat as me ?????? Help |
|
|
Re: Care giving for MS
posted at July 9, 2012 6:47 PM EDT
|
Posts: 1923
First: November 27, 2011 Last: May 18, 2013 |
In Response to Care giving for MS: I am a 52yr. old mother of a daughter (26) that has MS. Diagnosis in 2009 with 6 active lesions on her brain, 2012 has double the amount of active lesion down her cervical. I am her sole caregiver.( my husband works out of town ) half the time Her cognitive is so effected. I am raising a child again. I wish I would of known 3yrs ago that I would have to have all my strength, body, and mind. Because my spirit is fading.I go to support groups, they are not a 24/7...anybody in the same boat as me ?????? Help Posted by reneekrupa I am very sorry for her and you - I know this must be hard. Would there be any way that you could get some help during the day-hours at least - just to have some more strength around for the physical stuff and some companionship, even a few days a week. My community has a respite care facility to help relieve some of the strain on caregivers like you. Of course, that is just a mild refrain but it does help the caregiver. I know it is hard to think about the future but there may come a time when she may need more care than you can give. I'd start looking around for other resources or help. Although caregivers are suppose to be "super-people", they are only human and humans fail, get ill, get stressed and get older. I had a time I was just so physically and mentally exhausted that I sat down in the middle of the floor and cried while in the middle of an important care routine. It was at that moment that I knew that I could not continue to do it alone. It was a breaking point but also an awakening (realization) that it was time to stop being the total caregiver and recoop some of my roll as a loving wife - love is just as important as care. I wish I had more knowledge for you to make it all better. Best To You ! |
Forums » Relationships » Caregiving » Care giving for MS
