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Care giving for MS
posted at July 9, 2012 12:48 PM EDT
Re: Care giving for MS
posted at July 9, 2012 6:47 PM EDT
First: November 27, 2011
Last: March 9, 2014
In Response to Care giving for MS:
I am a 52yr. old mother of a daughter (26) that has MS. Diagnosis in 2009 with 6 active lesions on her brain, 2012 has double the amount of active lesion down her cervical. I am her sole caregiver.( my husband works out of town ) half the time Her cognitive is so effected. I am raising a child again. I wish I would of known 3yrs ago that I would have to have all my strength, body, and mind. Because my spirit is fading.I go to support groups, they are not a 24/7...anybody in the same boat as me ?????? Help
Posted by reneekrupa
I am very sorry for her and you - I know this must be hard.
Would there be any way that you could get some help during the day-hours at least - just to have some more strength around for the physical stuff and some companionship, even a few days a week.
My community has a respite care facility to help relieve some of the strain on caregivers like you. Of course, that is just a mild refrain but it does help the caregiver.
I know it is hard to think about the future but there may come a time when she may need more care than you can give.
I'd start looking around for other resources or help.
Although caregivers are suppose to be "super-people", they are only human and humans fail, get ill, get stressed and get older.
I had a time I was just so physically and mentally exhausted that I sat down in the middle of the floor and cried while in the middle of an important care routine. It was at that moment that I knew that I could not continue to do it alone.
It was a breaking point but also an awakening (realization) that it was time to stop being the total caregiver and recoop some of my roll as a loving wife - love is just as important as care.
I wish I had more knowledge for you to make it all better.
Best To You !