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does anyone else having to deal with a spouse that has RA?
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Caregiving
does anyone else having to deal with a spouse that has RA?
<font face="arial, helvetica, sans-serif" size="1"><div>In this caregiving message board lean on others for advice, tips or just the proverbial shoulder to cry on.</div><div><br /></div></font>
I really need advice or help. I have watched my husband go down with his RA and it seems that it is not relief in site. Since of May last year I have watch the man that I knew change to someone that n
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Cat:8548aeff-cf8c-4e73-ad17-e0a4380e2232Forum:7bd0772e-38a2-437e-9e64-4a31de425465
Cat:8548aeff-cf8c-4e73-ad17-e0a4380e2232Forum:7bd0772e-38a2-437e-9e64-4a31de425465Discussion:50a56a1f-19f7-4b24-8341-aa3f0bda6883

Forums » Relationships » Caregiving » does anyone else having to deal with a spouse that has RA?

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Forums  »  Relationships  »  Caregiving  »  does anyone else having to deal with a spouse that has RA?

does anyone else having to deal with a spouse that has RA?

posted at January 17, 2013 11:31 AM EST
Posts: 2
First: January 16, 2013
Last: January 17, 2013
I really need advice or help. I have watched my husband go down with his RA and it seems that it is not relief in site. Since of May last year I have watch the man that I knew change to someone that needs care. I seen changes in him that I thought I would never see. I am having to help get dressed,trim his finger and toe nails and someone that doesn't want to get out of bed before 10 or 11 each morning. He was the one that I depended on and now it reversed. I know it is suppose to be for better or worse, but I was wondering this bad. I have know one to help or give me a break from him. I spend most of my days in the house instead of doing things outside. what little time I get is when I go to the store that is 4 miles from me.  I am lonely , confused, worried and very stressed; and don't knew who or where to turn. I have tried contacting a group that is suppose to help and can not get anyone on the phone... Does anyone have any advice?  I am ready seeing a shrink!

Re: does anyone else having to deal with a spouse that has RA?

posted at April 27, 2013 7:34 PM EDT
Posts: 2
First: April 27, 2013
Last: April 28, 2013

I just joined AARP today, so I haven't seen your post until now. Just so you know and understand more, I want to let you know that I also have Rheumatoid Arthritis, (AKA  R.A.). I just got it last year at the age of 49. My daughter also has it, she got it at the young age of 10 years old, now 23.  I went through hell and high water with her. All I did was cry and so did she. Of course children have a much harder time understanding why and I didn't know either. I had to care for her, send her off to school and get ready for work myself. I had no idea that I too would have this horrible and exetremely painful disease. After the recession and my office closing down, my husband died, my daughter turned 18 so she moved out and I was evicted from my home because I didn't have enough money from unemployment to pay my rent and I received the max. Anyways, I ended up being together with my husband's best friend and thank God because then I got R.A.  We are not yet married but plan on it and both of us are firm believers in for better or for worse but everyone needs "me" time as well. He cares for me in a big way too. He dresses me, trims my finger and toe nails too as well as he must get into the shower with me and wash my hair, he must brush my care, cook my meals, help me out of chairs, into bed, cleans house and all he wants to do is make sure that once my medications start to work that I can be left alone so he can find work. He loves me so much as I do him. We don't have a car so he takes the bus to the grocery store and returns in a taxi cab to our door with a full truck. Yes, this is one hard job and neither one of us ever expected. I cry alot because I am only 50 years old and I can't do hardly anything right now and also realize that there is no cure and this is how the rest of my life will be.  Not true, he must first see a G.P., (family doctor), to refer him to a Rheumatologist Specialist who will give him a prescription for medications that will help, if not, go back and tell Rheumy. They know that everyone is different and there are a lot of drugs for R.A. pain.  Educate yourself on the Internet about R.A. it is pretty serious and very painful. I have played the "caregiver" before with my daughter and worked a full time job as well. so I do understand what your going through. I am actually having a much harder time being the patient who no longer has the life she had and suffer dearly in pain as well.  Try to understand more of the living hell your husband is going through and try not to worry so much about things that don't matter. Go to facebook, they have a lot of R.A. group and search Caregivers of Autoimmune Disease Unite and another one is Friends and Family of Autoimmune Disease. These people will write you back in less than 24 hours, most of them are there all night long. That is all I have to offer you right now. I sure hope you are able to work it out with your husband!!

Re: does anyone else having to deal with a spouse that has RA?

posted at May 1, 2013 2:49 PM EDT
Posts: 1098
First: October 22, 2007
Last: June 18, 2013

We are so glad you jumped in and responded.  This is a great helpful post for anyone dealing with R.A.  Sounds like you have a great attitude overall as well.  Welcome!

Forums » Relationships » Caregiving » does anyone else having to deal with a spouse that has RA?