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Web Resources for Consumers

By: Source: AARP.org Date Posted: 2004-11-01 00:00:00-05:00

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Consumer Resources

Palliative Care and Hospice, Grief, Loss and Decision Making

AARP Grief and Loss Programs
A wealth of information to help those coping with loss, including discussion groups.

American Hospice Foundation
Booklets on grieving and other end-of-life topics can be ordered.

Dying Well
Information for patients, caregivers, families.

GriefNet
Online information and support.

Growth House
Wealth of information on various topics related to advanced illness, dying and death.

Hospice Foundation of America
Promotes hospice and provides tools to educate professionals and the families they serve in issues relating to caregiving, terminal illness, loss and bereavement.

HospiceNet
Resources for individuals, caregivers.

National Hospice Foundation
Ample information on hospice concept, choosing a hospice, insurance and Medicare issues, etc.

National Hospice and Palliative Care Organization
Information about hospice, searchable database to locate hospices

National Resource Center on Diversity in End-of-Life Care (NRCD)
Source of in-depth information, extensive bibliography.

Grieving Children or Coping with a Child's Death

Children's Hospice International
Provides education, training and technical assistance to those who care for children with life-threatening conditions and their families.

GrievingChild.org
Materials, activities for children under age 12, information for parents on helping their children.

Cultural Diversity Sites

ACCESS
ACCESS to End-of-Life Care: A Community Initiative is dedicated to improving end-of-life care services culturally and ethnically diverse populations. In-depth information and bibliography. Links to other resources.

Asian and Pacific Islander American Health Forum
National advocacy group working to improve the health of Asian and Pacific Islanders.

Cross Cultural Health Care Program
CCHCP addresses broad cultural issues impacting the health ethnic minority communities.

Diversity Rx
Models and practices, policy, legal issues, networking and links to other resources.

EthnoMed
Information about cultural beliefs, medical issues and other related issues pertinent to the health care of recent immigrants.

National Resource Center on Diversity in End-of-Life Care (NRCD)
Source of in-depth information, extensive bibliography.

Native Elders Health Care Resource Center
National resource center for older American Indians, Alaska Natives and native Hawaiians to empower culturally competent healthcare.

University of Michigan Cultural Competency Program
Source of in-depth information, tools, and resources. Extensive list of publications related to multicultural awareness.

Other Useful Sites

AARP
Through information and education, advocacy and service, AARP seeks to enhance the quality of life for all by promoting independence, dignity and purpose.

Administration on Aging
Information, referrals and outreach at the community level for older people and caregivers; in English and Spanish.

Aging With Dignity
Advance directive document and video.

National Family Caregivers Association
Information on many aspects of caregiving.

Well Spouse Foundation
Information and support for spouses who are caregivers.