Alert
Close

Top the Trizzle leaderboard by 5 p.m. Friday to win a $100 gift card! Learn more

HIGHLIGHTS

Open
AARP Games Tournament

REAL POSSIBILITIES

AARP Real Possibilities
Car buying made easy with the AARP Auto Buying Program

Download the ipad App

AARP-iPad-ePub-app

DRIVER SAFETY

Piggy bank on the road - AARP Driver Safety

Take the new AARP Smart Driver Course!

Contests and
Sweeps

Safe Driving in 2014 Sweepstakes

Learn how AARP Driver Safety can help you stay safe—and enter for a chance to win $1,000. See official rules. 

KEEP BRAIN ACTIVE!

AARP Games - Play Now!

AARP BOOKS

Planning for Long-Term Care for Dummies

Get expert advice on planning for your own or a relative’s future care needs.

Webinars

Learn From the Experts

Sign up now for an upcoming webinar or find materials from a past session.

Learning centers

Get smart strategies for managing health conditions.

 

Arthritis

Heart Disease

Diabetes

Most Popular

Viewed

share your thoughts

What does the health care law mean to you? Your story is important. We read and learn from every story and it helps us in our educational efforts. We may even use your comments (with permission) to brief legislators, inspire readers and more. Please share your story with us. Do

Massachusetts

Lopsided Long-Term Care Spending

Less money for home- and community-based care

Massachusetts lacking home care services

Donna Gibbs, 54, spent years in a nursing home before she discovered her Medicaid benefits could pay for home-based care to deal with her paralysis, which would allow her to live independently. — Photo by Christopher Capozziello

Donna Gibbs was sent to a nursing home after complications from gastric bypass surgery caused paralysis. Eventually, she was placed on an Alzheimer's ward.

"I was living with death," said Gibbs, 54, of Middleton. "People were dying around me every day."

See also: Alternative housing options for long-term care.

Gibbs lived at the nursing home for more than three years, unaware Medicaid could pay for home-based care for her to live independently. Once a friend mentioned that option, she chose it. It took more than a year to make the arrangements to move her to a condominium with in-home help 63 hours a week.

Now, Gibbs said, she's thrilled to be living independently, relishing such simple pleasures as choosing her own food and schedule.

Many disabled and older Massachusetts residents find it difficult to get Medicaid to help pay for the services they need to live on their own. Their struggles are worse than those of residents in most of the country, according to a scorecard compiled by the AARP Public Policy Institute, the Commonwealth Fund and the SCAN Foundation.

In the national survey, Massachusetts ranked 40th among the states and the District of Columbia last year for the percentage of Medicaid beneficiaries first receiving long-term care services in a home- or community-based setting, rather than in an institution. It ranked 30th for overall affordability and quality of long-term services and supports. The survey evaluated 25 different measures such as home care, assisted living and nursing home facilities.

Massachusetts received its worst rankings on two affordability measures, scoring 46th for the high costs of both private home care and private nursing home care, when compared with median household income. The state also got low ratings for support for family caregivers, 39th place.

"This is very disturbing," said Al Norman, executive director of Mass Home Care, which advocates for community care. "Hundreds of people referred to nursing homes don't have to be there."

Ten percent of the state's nursing home residents could manage at home if necessary services were provided, the scorecard showed.

Gov. Deval Patrick, D, pledged in 2008 that his administration would help ensure that older and disabled residents could live independently, which most people want. But Norman said the administration has not done nearly enough. Only 31 percent of people needing long-term support are first given the option of in-home care, he said. "Putting people in nursing homes as a first choice has to change."

Next: A piece of health care left behind. >>

Topic Alerts

You can get weekly email alerts on the topics below. Just click “Follow.”

Manage Alerts

Processing

Please wait...

progress bar, please wait

Tell Us WhatYou Think

Please leave your comment below.

Discounts & Benefits

From companies that meet the high standards of service and quality set by AARP.

Woman trying on glasses in optometrists shop

Members save up to 60% off eye exams and 30% off eyeglasses at Pearle Vision.

Prescription medication spilling out of bottle

Members get a free Rx card from AARP® Prescription Discounts provided by Catamaran.

AARP/Walgreens Wellness Bus Stops in Clarksdale, MS

Members can get exclusive points offers from Walgreens and Duane Reade.

Caregiving walking

Caregiving can be a lonely journey, but AARP offers resources that can help.