Q. Did working on the book change the way you viewed the experience of raising Jorge Luis?
Jorge: As soon as he was born, we understood that something was wrong, and then 10 days later, we are told he has this condition. We were altered as a family. The diagnosis really changed the way we treated him, but I think, especially after writing the book, that everything happens for a reason. Now he understands what's going on with his condition and that he's a special kid because he can help others.
See also: 9 secrets of caregiving.
Q. Can you describe the first time you saw Jorge Luis?
Laura: We were in the delivery room of the hospital in Puerto Rico, and things got complicated. The umbilical cord got tied around his neck, the doctors were trying to give me an epidural that wasn't working and then my husband was getting dizzy and I had to tell them to get him out of the room. After they cleaned up my baby and gave him to me, I immediately knew something was wrong, although when I held him for the first time I also immediately knew what love was — it was a bittersweet moment. I looked into his eyes, I was like: "Oh my God, this is a part of me. This little boy can't defend himself; I'm all he has."
Q. If you could go back in time and give advice to the recently married Jorge Posada of 10 years ago who has just been told that his child has craniosynostosis, what would it be?
Jorge: When we first went to the doctor's office and they told us about the craniosynostosis, Laura and I looked at each other and we knew it was going to be a challenge. We're a strong family because of Jorge, and it's all because of him that we are even closer to our own parents. I would tell him that this is something bad, but it's fixable. If you find out within 10 days, like us, it's a difficult experience but there is hope. Looking at Jorge now, he's the perfect example to tell all these kids that it's going to be all right.
Q. And if you could also enter that time machine, what would you tell that mother in the delivery room?
Laura: To trust your instincts as a mom. If you think there is something wrong with your child, ask all of the questions that are on your mind. It doesn't matter if they say no or think you're crazy, just ask questions, do research, don't sit back and believe everything the doctors tell you—they are only human and sometimes they are going to miss a diagnosis. I was lucky, I kept asking and digging and he was diagnosed within 10 days. Instinct cannot be taught in medical school or learned, you are just born with it.
Q. And what is the most important lesson Jorge Luis has taught you about being a parent?
Jorge: To have an open heart; to be humble. Not everyone is perfect and everyone goes through tough times. It's either your son or something else that always happens in every family, and it's just a way of bringing you to a humble state and being very appreciative.