There is no more hopeless a feeling than those moments when you're alone and overwhelmed by the demands of being a caregiver. But you're not alone. In most communities, online, and on this Web site, you'll find all kinds of resources that can support you when you're feeling isolated and helpless. Reach out! Ask for help!
Here's a great place to start: The Family Caregiver Alliance. Based in San Francisco, the alliance is a pioneer in the field of caregiving. The organization has addressed the needs of families and friends who provide long-term care for loved ones at home for the past 30 years
Last year, I visited the alliance and met some staff members. Donna Schempp manages a team of dedicated social workers who take calls on its toll-free national hotline, 800-445-8106, Monday through Friday, from 9 a.m. to 5 p.m. Pacific time.
"We are usually dealing with people in crisis," Donna said. "They find us on the Web, through a social worker at their doctor's office or another social service agency, or by word of mouth. The problem is that most caregivers wait until they're desperate, because they've been trying to do it all alone for three or four years."
But don't despair! Even if you don't live in the Bay Area, your call for help will be answered. And these are not five-minute calls. The social workers spend time getting information about you, the caregiver, and your situation, the age and disability of the person you care for, and your relationship to the family member or loved one you care for. The alliance is then able to search its database and to recommend resources in your area.
If you live in the Bay area of Northern California, the alliance will do a preliminary phone consultation. Your contact may suggest either that you come into the office for a full intake interview, or she may schedule a home visit by one of the social workers to assess the needs of the patient and the family caregiver, as well as the safety of the home environment.
The organization’s Web site answers frequently asked questions with extremely valuable content based on their 30 years of experience. The alliance also gives workshops, classes, and conferences and holds discussion groups.
Be sure to visit the Web site at www.caregiver.org, or call the alliance toll-free at 800-445-8106; or locally at 415-434-3388.
Family Caregiver Alliance
180 Montgomery Street
Suite 11001
San Francisco, CA 94194